The Boob Report IV – Coming Out of the Haze

after surgeryWell that was a huge load off my chest. Sorry. I’ve been dying to tell that joke. I have to make up for lost time. Life has been a little on the wild side since my bilateral mastectomy.

I will be posting a huge thank you to everyone, but I want the fog to lift a little more.  You are all the very best!  Here’s my update:

I have been in a Jimi Hendrix Purple Haze since the surgery. Dreamless sleep took up most of the first few days. In a slow motion ADD-like state, I would wake up and notice a cloud outside my window. With a growling stomach, I would start to roll out of bed, (the most painful movement of all), then I would give up and lay back down, check my email on my phone, notice a cloud outside my window, hit a few likes on Facebook, realize I was still hungry and force myself out of bed. I would eat something, take my pills, notice another cloud forming in the distance and go back to sleep for a few hours. Then I would wake up and start all over again.

Managing my pain and staying on a pill schedule was and still is the main focus. Thank you Danny!

I lie on my back at a 45 degree angle for proper healing, drainage, and since it’s the only painless position. After sleeping like an Egyptian mummy for a week, I am used to it. Since I am using my ears for ballast, I  shouldn’t get any wrinkles. Bonus!

Four tubes ran from my body into clear hand grenade-like plastic bottles. They collect the fluids. It is very sensitive where the tubes enter my body. I held the bottles while taking my first shower then handed them to Danny and said, “Don’t drop them. This like handing you my heart.”

Drains are used for many kinds of elective surgery as well. Two are at the base of my armpit while the other two collect from my chest. The nurse removed two of them today and the uncomfortable armpit drains will come out on Monday. Yes!

I came up with an idea for my second shower – a belt! I pinned them on then realized the tabs are loops. My doctor wasn’t aware of that either until I showed him my fancy belt yesterday.

The drains look pretty cool actually. I had Danny take a picture after my shower. 

locked and loaded2

Locked and loaded.

My husband Danny has been “stripping the tubes” and measuring the fluids since I got home on Sunday.  Yep. I had to stay an extra night in the hospital. I always have the opposite reaction to drugs. Why is that? I was still cracking jokes and yammering on about my Boob Report while they carted me into surgery. They must have given me a little extra sedative. It took me a whole week to get it out of my system and I am still not close to being clear-headed. This is the first day I have been able to focus and type.

Believe it or not, the most painful part of the surgery was my LEFT EYE! Do you remember my post about how I sleep with my eyes open? Well, the drugs were so dehydrating, my left eye felt like a hot poker had branded it during the 4 hour surgery. The general anesthetic must only work on boobs or the removal of them.

My first bedside doctor was an ophthalmologist!

Dehydration made it hard to talk, but of course, I talked anyway. Danny spoon fed me ice chips for hours to keep my lips from sticking to my teeth.

I couldn’t pee or get out of bed without nausea on Saturday, hence the extra night in the hospital.

They gave me an IV of anti-nausea medicine and I slept for three hours. When I woke up, I ate everything in sight and raved about the hospital food. I savored the Jell-O like an exquisite dessert! Okay. I must have been really out of it.

Danny drove me home on Sunday.  I had to learn how to get in and out of bed without the use of my arms. Man. I use them for everything, but my feet are becoming pretty dang dexterous. I learned that if I lie on my left side and hook my right foot on the outside of the mattress, I can pull myself upright. Ingenious. I know.

The doctors wanted me walking right away to increase my blood flow and rid the drugs from my system. It really does help!

The pathology results concluded I am in the thirteen percentile for recurrence of any kind of cancer. Low numbers are good. The way I look at it, I have an 87% chance for never getting cancer again! That means, …drum roll please…NO CHEMO!!!

Chemotherapy reduces the chances for recurrence by 25%. Since my Oncotype percentile is 13%, chemo would only reduce my stats by 3%. It wouldn’t be worth the side effects. Yay!!!

I will take the pill, Tamoxifen, (a pretty cool drug), for at least the next five years. You see, every cancer thrives on something. My rare lobular cancer thrives on estrogen. This pill mimics estrogen and if any cancer cells start showing up in my body, POW! The Tamoxifin blows them up!

Radiation was never in the cards since my lymph nodes are clear (so is the left breast), and there is nothing left to radiate. No boobs = No radiation.

I would like to nominate myself as the poster child for EARLY DETECTION.  Yeah. I got lucky. I listened to the news about how women don’t need mammograms every year, so I skipped 2012. The cancer would not have shown up on a mammogram last year because lobular cancer is fingerlike. If I had skipped this year, I would be screwed and not in that low percentile.  Scary!

Schedule a mammogram every year during the same month. Some cancers grow very fast compared to mine.  

You don’t want this kind of ride. It was NOT fun.

I had four tumors. They were 1 mm, 2 mm, 5 mm, and the largest was 16 mm. That stinkin’ thing had been growing in me for five to seven years!

Everyone’s cancer is unique. Who knew? There are many different combinations which require different treatment. Remember, I am that 1 out of 5000 healthy women who had (nice to put that in the past tense!), lobular cancer. It has an estrogen receptor, but it could have a progesterone or a non-hormonal receptor. There are 21 genes in the breast cancer’s DNA and all of those are studied along with many other factors to come up with each individual’s Oncotype score. You can’t compare cancer or treatments.

Some cancers are very fast growing and feel like a pea or piece of hard bubble gum. Mine grew at a moderate pace and mimicked the surrounding tissue.

Estrogen is my enemy. I will be avoiding all forms of soy and flaxseed since they raise estrogen levels in pre-menopausal women. I tried to figure out why I got this hideous and dreaded disease. I am suspicious of the soy craze that hit several years ago. Being somewhat lactose intolerant, I loved the taste of soy milk. I drank it until my periods got wonky and my breasts became tender all the time. I began avoiding products with soy and found it was even in our vitamins! It continues to be in many foods including organic bread. My children’s pediatrician recommended never giving any soy products to my daughter and that was many years ago.

Scientists are beginning to study the link between soy and certain types of breast cancer in women who are pre-menopausal. It takes years to get results. We’ll see.

In the meantime, I’m working on healing up and feeling normal again. My normal means kidding around and making dumb jokes. I asked Danny if he liked the “quiet me” this past week. He replied that he loves my crazy off-the-wall way of thinking about things and he missed me. What a guy!

Thank you so much for all the amazing support. I truly believe that the reason I have an amazing prognosis is because of  YOU!

I will be writing a proper thank you when the fog completely clears. The purple haze still lingers, but at least I can see the door. The floor, not so much…

Related articles:

The Boob Report I – Roadblocks and U-Turns

The Boob Report II – Laughter is the Best Medicine

The Boob Report III – Post-op

Breast Cancer

Mastectomy

P.S. Typing hurts, so I am reading, but not commenting very much at this time. Thanks again for everything!

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About Susie Lindau

I am a Boulder, Colorado writer and artist who loves adventure both real and imagined. Come with me. It's always a Wild Ride!
This entry was posted in Boob Reports, Humor, Life and tagged , , , , , , , , , . Bookmark the permalink.

168 Responses to The Boob Report IV – Coming Out of the Haze

  1. Pingback: I Had a Little Adventure While You Were Dancing! A Photo Essay | Susie Lindau's Wild Ride

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  3. I am so happy to hear how you are doing! Can I say Almond Milk? I don’t believe it has any soy (I avoid soy, too, because of the estrogen) and the carbs are effectively 0. My diabetes loves it!
    I understand about the arms and feet too. Mine is opposite; my arms are strong and my legs are weak.
    Keep hanging in there,
    Scott

    Like

    • susielindau says:

      Hey Scott! I am doing great! I played a full hour of tennis today. I even served. I’m back!
      I have been drinking coconut milk. Almond is yummy too! I am glad you are doing well too! :) Thanks for stopping by!

      Like

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  7. Didn’t know the info about the soy and flaxseed, so thanks for sharing that!! Plus, you just totally rock, anyway!! :)

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  8. Pingback: The Boob Report – A Sticky Situation | Susie Lindau's Wild Ride

  9. viveka says:

    So happy for you that you’re free from the chemo …. wonderful news, that is an experience I don’t anyone to go through. Amazing how great you look … with all those drains – you’re one massive star, Susie.
    And for somebody that get pain from typing .. you are a true super trooper.

    Like

  10. jake kale says:

    Wow, was I ever out of the loop. Really sorry to hear this news, but it’s great that you’re on the road to recovery! I’ve been down as hell lately and a right self-indulgent, mopey little git, and your attitude here is a real eye-opener. I will now commence following your example and kicking myself into touch. And nagging my mother, sister, aunt and niece to get themselves screened.

    PS: Is it weird that I’m completely jealous of you getting to use the “load off my chest” gag? Cos I am!

    Like

  11. vb holmes says:

    A real ordeal–good news about the chemo. Wishing you a speedy recovery and many years of good health.

    Like

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  13. Susie, ive been away a while so just catching up on everything – im so sorry its only now that ive come back! my thoughts are with you xxx

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  14. Pingback: The Boob Report – Roadblocks and U-Turns | Susie Lindau's Wild Ride

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  16. Welcome back. I’m having a little celebration here. Yay!

    Like

  17. Amazing journey and wonderful writing. Thanks for sharing.

    Like

  18. GabbyAbby says:

    Oh yeah — whatever you do Danny *don’t drop the grenades!* That’s a sexy look there Six Gun Annie. Amazing how well you look considering what you’ve described in your posts. I’m privileged to have been able to ride shotgun along with you on this journey Susie. Fantastic story. I’m sure you’ll put it to good use. Someone’s life will be changed be it. For certain. Cowboy on girl!

    Like

  19. Cayman Thorn says:

    Hey you Wild Riders. I usually reserve this blog for last, because that’s how much fun I get out of being here. But tonight, it’s been a while and I had to get here first if only to let you know that I think about you guys every single day.
    I have nothing witty beyond that. I’m just thinking about you both, much. And sending love. More.

    Like

  20. muddledmom says:

    I admire your amazing attitude. Thanks for sharing your story, Susie. And congrats on the wonderful news of no chemo.

    Like

  21. adinparadise says:

    Well done to you, Susie. I so admire your courage and sense of humour through all this. Wishing you all the best on your road to recovery. Gentle hugs to you. :) xx

    Like

  22. You’re a damn brave woman, Susie (not to mention, creative!). Wish you a speedy recovery now that you are tumour and soon-to-be tube free…

    Like

  23. Joe Cardillo says:

    Way to go dude!
    You are clearly an inspiration to a ton of people, really glad all went well and you are on the mend.

    Like

  24. Kevin Brent says:

    So glad you can avoid having to do chemo!!

    Like

  25. So glad to hear you’re news. Take it easy and get well soon :)

    Cheers!

    Like

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  27. colonialist says:

    Hoping for an update to show you’re OK – a paragraph will do! Even a one-liner …

    Like

  28. I have only recently discovered you through the phenomenal folks who blogged about you on the day of your surgery. So glad you won’t need chemo or radiation, and you look great, even with all the drains and tubes.

    In addition to avoiding soy and other estrogen-containing stuff, also try to buy organic when you can. Many pesticides have a molecular structure that is very similar to that of estrogen, and the body doesn’t always tell the difference. And there have been studies that suggest that pesticides can fuel the growth of cancer cells.

    Thank you for sharing your experience and for showing how important early detection is!!! Hope you heal up quickly!

    Like

  29. AMAZEBalls News – No Chemo, No Radiation and a Low % of reoccurance – I knew you would KICK BUTT!!! Take It Easy and DO NOT Overdo It – Sending Good Thoughts and Prayers are your recovery:)

    Like

  30. pegoleg says:

    I’m so glad your recovery is going well. Only you could come up with such a clever/fashionable solution to the drainage issue – locked and loaded! No chemo or radiation- yah whooo!

    I’m a bit concerned about the soy connection you mentioned. I read that taking soy PREVENTS cancer in teen and young adult women. I have been feeding it to my girls for almost 10 years. I’m going to have to study up on this topic some more.

    Hope you’re feeling better and stronger every day, Susie.

    Like

    • GabbyAbby says:

      Oh Pegoleg — please DO read up. It’s just the opposite and soy is not in any way a miracle food. It’s intake should be limited, particularly in women. It is a plant ‘estrogen’ and the primary component of all the ‘natural hormones’ you hear about. (Think Suzanne Somers and her “bioidentical hormones”).

      Like

  31. I had a very optimistic visit with a cancer Dr. yesterday on options I have with radiation in my situation. These optimistic reports have turned my world around after that first dismal diagnosis. And so I hoped in my car, put it in gear and this songs came on…on an 80’s radio station. And I had to sita while an dthink. I thought you could appreciate the song too…keep healing my friend! http://www.youtube.com/watch?v=rW0WSLEarqs

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  32. So glad to hear the good news…and the joke. I think your attitude is going to make a huge difference in your recovery, so Danny won’t have to worry about a quiet Susie for long. Keeping you in my prayers and looking forward to reading more from you…for decades to come. :)

    Like

  33. Kecia Adams says:

    You are a rock star, Susie! Happy to hear your positive prognosis and thanks for being there for us even in YOUR hour of need. Be well! We need you to guide us on the wild ride!

    Like

  34. The Hook says:

    What can I possibly say at this moment?
    I’ve spent my life reading of heroes and fantastic tales, but you’re the real deal, Susie Lindau.
    You have my respect, admiration and love.
    Be well.

    Like

  35. rgayer55 says:

    thank you for sharing this journey with others. Perhaps someone will take your advice about getting checked and save their life. You rock, Susie.

    Like

  36. Thrilled to see something from you. And the funny Susie phrases. (” using my ears for ballast, I shouldn’t get any wrinkles” Funny – I know it’s sad – but it’s funny!)
    They never tell you about the difficulty with arms – you sound like you’ve got a toe hold around that.
    Jello is a treasure.
    Soy – warnings have been raised – especially with children on vegetarian diets. Evidence is high with triggering breast cancers and thyroid diseases. Some groups don’t want to hear it, but soy may not be your friend. BIG thanks for mentioning that warning.
    You look good kid. We are the sum of our experiences – and you are building something great with this one.

    Knock, knock
    Who’s there?
    Turnip
    Turnip who?
    Turnip the volume, it’s quiet in here.
    (Glad you’re wilding again!)

    Like

  37. unfetteredbs says:

    Been thinking of you — you’re one brave lady. I think it is tremendous that you are sharing so openly. You rock lady.

    Like

  38. Cayman Thorn says:

    Everything you do has a big fat exclamation point attached to the business ended cursive of your sexy gallivant. In non-Cayman Thorn speak, that means you rock the casbah of all things disco and true. Okay . . that’s still Cayman Thorn speaking. Tell you the truth, I don’t know how to rid myself of the guy, outside of an exterminator. And seeing as how he’s way too much fun for such an improper ending, I’m gonna keep shopping for a better idea.
    And since I have the song stuck in my head now, let’s do some Clash together. I may not possess your sexy, but the soul is running right along side. Always and steady.

    Like

  39. Lynn Kelley says:

    Susie, you’re amazing. I’m so happy you won’t have to have chemo or radiation and that your chances of getting any type of cancer from now on are so low.

    You sure know how to educate your readers while still in a fog! I learned so much in this post. Thank you for all this info. My mom took tamoxifen, too, but I didn’t know how it worked.

    Those plastic grenade bottles are surreal. Through parts of this post, I felt like I was reading a sci-fi novel. All the things you’ve been through blows my mind. And having to get out of bed without using your arms! Good thing you’re so athletic. And coming up with a belt to hang those drainage bottles on, way to go! I can’t believe they actually expect people to take a shower with those things dangling from their bodies. So a patient had to invent a solution for this? What the heck? And you came up with this idea while still in a fog. Remarkable.

    Your poor left eye. You’ve been through the wringer. I’ve been praying for you everyday and I’m thankful everyone’s combined prayers have been answered. The sooner all this is behind you, the better.

    Your sense of humor rocks, as usual.

    So you got those armpit plastic bottles removed today? Yay. I hope the fog has lifted and you’re amusing Danny again. So it looks like all will be good for you to keep your vacation plans? I hope so. And I hope you and Danny have the time of your lives.

    Like

  40. I just recently started following your blog and I’m so glad that I stumbled upon it! You are an amazing woman and have clearly inspired countless people. THERE NEEDS TO BE MORE PEOPLE LIKE YOU IN THE WORLD. That’s all :)

    Like

  41. Thanks for the best opening line ever! Even through all this your humour shines through. Great news all around, #SusieStrong! Can you hear the cheering?

    Like

  42. Hi Susie – I’m giving you The Sunshine Award next week for your courage and strength. Would love to connect with you as I will be having a bilateral mastectomy myself in the next month. Email address is: suzanne@suzannevince.com. Take good care!

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  43. Whew! Soooooo glad to hear a positive report. I remember the tubes. My mother had them too. That was the grossest part. My dad was a real trooper though. He drained and measured and did all of that stuff Danny is doing for you. Some men are truly amazing.

    You just rest now and get better. No sense jumping into the deep end right away. It’ll still be there when you’re ready.

    Glad to have you back!

    Patricia Rickrode
    w/a Jansen Schmidt

    Like

  44. So happy to hear you are recovering well and that you won’t need chemo. Rest and take it easy. Stay strong and positive. You are an inspiration, thank you for sharing your story :)

    Like

  45. Denise Hisey says:

    Rock on, Susie!
    you are well on your way to slaying this monster!

    Like

  46. Cathy Ulrich says:

    Thanks so much for the update, Susie! So glad you don’t need chemo and that you’re on the road to recovery. You’ll feel better once those axillary drains are out today, too!

    Like

  47. Amber West says:

    So glad no chemo is needed!

    Thank you for sharing your experiences – you never know who (or how many) will benefit from what you’ve shared.

    And that photo? Reminds me of Lara Croft – Tomb Raider. Seems apropos you’d already be taking a kick-butt pose in front of the camera.

    Like

  48. kimterry says:

    Reblogged this on KimTerry and commented:
    What a girl! Am SO reblogging Susie Lindau’s inspiring comeback!

    Like

  49. Mark says:

    My prayers are with you and your family.

    Like

  50. Susie, so glad everything went so well! You are wonderful.

    Like

  51. That picture is so amazing….if it was on YouTube it would go viral. Happy to hear you don’t need chemo! Love the education of how all cancers feed on a specific item. Estrogen? Progesterine? Who knew that every cancer is different and has to be analyzed for what it needs to live…. AND WE ANALYSE IT TO MAKE IT DIE! DIE CANCER DIE!

    Like

  52. Proud of you! Keep up the fight!!!

    Like

  53. denmother says:

    You’re even neater on drugs! Wishing you a speedy recovery, Susie!

    Like

  54. Susie, you continue to be the coolest! You are an inspiration throughout your journey and you’re right, you are kicking C’s ass and will continue to do so! And thanks for sharing the info about soy – something I’ve been concerned about lately and will definitely read more about. you’re the best – happy thoughts continually flowing your way! xo

    Like

  55. Well aren’t you just the cat’s meow? I’d give ya a hug but I bet it would hurt. Ever so glad you are starting to come to the surface.

    Like

  56. zannyro says:

    You are simply remarkable. A beacon of hope and courage and inspiration. Your Danny is a diamond. God Bless you both…:)

    Like

  57. I used to think that illness was wildly out of the ordinary, but I learned that it is part of life, you ride it as best as you can and if you work it and are lucky, you survive and thrive. Your attitude rocks our socks, Susie. Thanks for the inspiration!

    Like

  58. EagleAye says:

    Awesome Susie. I am so glad you don’t have to go through any chemo. *whew* I wonder if you wouldn’t want to patent that belt you came up with. Could be handy for others in the same belt. So happy to know you’re doing so well.

    Like

  59. I agree with Danny – I miss you. Glad you’re getting back on your feet.

    Like

  60. 4amWriter says:

    So happy that you are over the hurdle of surgery and on the road to recovery. You’re so lucky to have Danny in your life; he’s a shining star. :) Keep kicking butt!

    Like

  61. aFrankAngle says:

    Keep up the positive attitude, and press on!

    Like

  62. Bowrag says:

    Great news and great blog!

    Like

  63. Congratulation, I am very happy at the news of your recovery. My prayers are for a whole new ride of life for you after this. Love to Danny, Thanks for keeping her well.

    Like

  64. Pingback: The Boob Report – Laughter is the Best Medicine | Susie Lindau's Wild Ride

  65. You are an absolute inspiration. Keep getting well Suzie. See you in Barca.

    Like

  66. CC MacKenzie says:

    LOVE the belt idea! I kept mine in fabric shoulder bags made by women of the McMillan Cancer centre. Go Susie!

    Big Hugs!

    Like

  67. kklindau says:

    Sooo so happy to hear all the good news! You ARE amazing…great frame of mind. I was told that I could wait 2 years for my next mamo…I am scheduling now!! Keep up the great up beat healing!!

    Like

  68. yourothermotherhere says:

    Your picture reminded me of Sigourney Weaver in Alien and we all KNOW she killed the alien, in your case, cancer.

    (scroll down a bit)

    http://www.scificool.com/sigourney-weaver-probably-wont-be-in-alien-prequel/

    I think it would be a very good idea if you had someone sew up a working model of your bottle holding belt and get a patent on it because you can bet you’ll be seeing it now and you might as well get credit for it. It’s a very good idea!

    Like

  69. PinotNinja says:

    Wonderful news! It’s so great to hear that you are coming out of the post-surgery fog — only a sharpish mind could invent the magnificence that is the drain-belt — and that all you have ahead of you is a smooth recovery trail with no more bumps. Keep on healing like a rock star (what’s more rock star than a day filled with drugs and bodily fluids?).

    Like

  70. You really are amazing. I admire how frank and honest you are about everything. For years I have tried explain that everyone’s cancer is different and everyone’s cancer treatment/reactions are different. My Mom passed at the age of 42 from breast cancer. I had breast cancer at 35 (I always said if my Mom had found it 5 years earlier she would still be with us). My older sister had hers when she was in her 50s. I had the genetic screening and it was non receptor. All three breast cancers were different and unique all in the same family.
    I am pleased you are doing so well and have the support system (Danny) that you have. You are an inspiration to women everywhere and I love your sense of humour.

    Like

  71. maesprose says:

    Glad to see you’re on the mend!

    Like

  72. SocietyRed says:

    You are incredible. Glad you’re home and healthy!

    Like

  73. You are a fine picture of health my friend!

    Like

  74. Good morning, darlin’! I’m so glad to see you post about this. And soooo happy to see how many people are here to show you the love! You really are an inspiration, Sooooz. When you’re done with that contraption, you and Danny can get back to some “naughtier” contraptions in the bedroom. You know, ones that don’t involve drains. Stay healthy. Smooches.

    Like

  75. When it comes to utility belts, Batgirl aint got nothin’ on you! Almond milk is delicious. Also, I know of a couple of soy-free protein shakes which are available, but I’ll have to look into whether they contain any flax derivatives. In the meantime, be patient with your healing – even wild riders need to coast once in a while

    Like

  76. Good news Susie – keep going!

    Like

  77. Reblogged this on .

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  78. Hello Susie,
    Back again. Your description of savoring the jello, had me giggling because I can identify with your post-surgery enthusiasm, after I had a benign ovarian tumor removed last year.

    On another note, I am so pleased to hear you will not have to endure anymore invasive yukiness and each day you are closer to recovery.

    I also think Mammograms should be as routine as cervical smears are; especially for pre and post menopausal women.

    Lastly well done to you. In your raising awareness of the disease and posting the photograph of you wearing the belt, I think it fairly safe to say Laura Croft is a wuss in comparison to you.

    Take care.

    Talia

    Like

  79. Hooray for no chemo/radiation! I am so happy you’ve got such a great prognosis. Thanks so much for the updates and info on breast cancer detection. I had skipped my mammogram last year but am scheduling one for this month. Wishing you pain-free days ahead as you rest and heal, Susie.

    Like

  80. pfstare says:

    What an amazing post – and that belt! Your spirit is inspiring. Hope the recovery continues to be quick.

    Like

  81. I’m glad you’re recovering :) I’m going to re-blog this because I think it’s something that every women needs to think about.

    Like

  82. jmgoyder says:

    Bravo Susie – sending love.

    Like

  83. Susie, I applaud you for your bravery and the willingness to share your triumphant battle with us all! And the half naked pictures! lol. They really do help to tell the story. And I also have the utmost respect for your dear husband Danny. Men like that are not the norm my friend. And I know you know that. Your strength is amazing. Your attitude is the reason why you will make a full recovery. Just remember to be patient girl. Hubby went through an eight hour surgery six months ago. It takes a while for your body to rid itself of all the drugs. And your body saps you as it focuses all its energy to heal. At times it will be frustrating. And it will require great patience on your part. Ah yes the Soy. Would that be GMO soy? Who knew back then? But we know now. You’re doing great Susie! Keep it up! Mwah! :)

    Like

  84. Lucid Gypsy says:

    Go brave lady – PINK RIBBONS to you!

    Like

  85. filbio says:

    Thank you for being so brave and so open about such a personal subject. What you are going through is not easy and you are facing it head-on and showing others that they have choices and can beat this. Inspirational is all I can say. Wishing you a speedy recovery and that it never comes back!

    Like

  86. Nelson says:

    Great to have you back. Susie. Your pictures and explanation of your surgery will benefit many people. Thank you for your honesty in sharing. Positive thoughts are always going your way.

    Nelson

    Like

  87. Clip Snark says:

    Thank you for sharing your experience. It is also beautiful story of love and devotion between you and Danny. I hope everyone has someone in their life that loves them so much they would measure drainage of bodily fluid. That is love. Your positive attitude is an inspiration!

    Like

  88. bulldog says:

    My wife’s second cancer was breast and she had to do the radiation and estrogen block pill route… she finished her five year a month ago… it seemed to go past so fast.. continue to get well and so pleased all came out for the best…

    Like

  89. Laura says:

    I’m sorry you’re so uncomfortable but really glad you don’t have to have chemo or radiation. And that belt is awesome.

    Like

  90. Thanks for the update on this stage in your Wild Ride with the Big C. I’ve been thinking about you. That’s fantastic news that you don’t need chemo.

    Like

  91. Janet says:

    You are so brave to share this. Rest and get well.

    Like

  92. PapaBear says:

    I won’t trouble you with a long message, but it’s good to know you’re home now, Susie. Rest plenty and get strong. ~Paul

    Like

  93. I love your humor and zeal for life!

    Like

  94. Eden says:

    Having seem too many people going through what you are Susie, I’m amazed you’re up to writing a post like that… but glad too. It’s great to have an update with some “good news”. Many, many >HUGS!<

    Rest when you can, move a bit more each day… keep smiling and sharing jokes (you mean Jell-o isn't an exquisite dessert? Mind if I don't tell my son that?)…

    Just take each day as it comes and feel better.

    Like

  95. neverphoto says:

    You’re tough/brave/strong to just post about this. I felt weak just reading it. Congratulations, you’ve already won.

    Like

  96. You are fantastic. Glad you’re coming out of the haze and that the hubs misses the real you. Sending you gentle hugs and a huge woo HOO!

    Like

  97. tomwisk says:

    Glad to have you back.

    Like

  98. mistyslaws says:

    Oh Susie, that is such good news!! Almost back to your old ways and NO CHEMO, Woo-Hoo!! And that is quite the fashion statement you are making with that belt. I think it will be all the rage in Paris and Milan next season. Tres sexy!

    I hope you heel up quickly, so you are back to your wild and crazy ways soon. You are an inspiration. Be well.

    Like

  99. Nia Simone says:

    P.S. Don’t strain yourself. You don’t have to thank us. We have to thank you.

    Like

  100. Nia Simone says:

    Yay! A post from Susie! I agree, best opening line ever. Love the photo. Danny rocks. I’m so happy you don’t have to do chemo or radiation. Cool. I got a mammo today. I, too, stopped because of the news reports. My doctor said I should still do it. That the clinicians are frustrated by the statisticians because they see too many real people suffer. If it catches the 25% of fast-moving cancers, it’s worth it for the clinical doctors not to see their beloved patients catch it too late. Mammograms do save lives. Today’s was the first I’d had in 3 years. I called them up and took the earliest appointment because of you.

    With a very gentle, virtual hug,

    Nia

    Like

  101. Ralph Tingey says:

    Susie, You are awesome to allow a photo with all the tubes hanging out of your body parts!! This has been your best “Wild Ride” ever!!

    Like

  102. Getting something off your chest…pretty much the best opening line ever! Thank you Nurse Danny for taking such good care of this wonderful woman. (I aways have to give some love to the caregivers). I am beyond elated with all of this good news, it just makes me smile. The purple haze is good, but not when you have things to do. Rest up and be well.

    Like

  103. Jess Witkins says:

    Susie, I’m so happy that the surgery went well and you won’t need any other invasive treatments. Both my mother and sister have overcome thyroid cancer, which required surgery and radiation. I understand how exhausting the treatment can be.

    And more so, I want to thank you (yes, again!) for your bravery and laughter throughout the situation. I worked several years in retail management, including intimate apparel. My team and I often assisted women who had the same surgery and were dealing with the tubes and discomfort. I wish I could have had each of them read your blog. You accepted the tubes’ necessity and did it with flair! You are my champion for baring all throughout this process. Rest up and know we’re all thinking of you. #SusieStrong

    Like

  104. I’m so happy for you and hubby. Get better real fast!

    Like

  105. You are such a beautiful rock star, Susie! I’m crazy inspired, and covered in goosebumps. Thank you for sharing so openly with us, and for kicking cancer in the booty! So much love, my friend.

    Like

  106. I am beginning to trulyappreciate the discoveries of my HS Sweetheart.

    Never mind that he kicked me to the curb when we were Sophomores in College so he could focus on achieving his dream — a PHD in DNA research. We remain good friends.

    His clinical studies and trials included identifying DNA markers for breast cancer risk (and, treatment protocol), HIV odds for advancing to AIDS (so, they could isolate high risk patients for aggressive treatment), and a plethora of other diseases impacted by DNA markers.

    Thanks , in part, to his work, you got stats that helped you make an informed decision, Susie.

    Bonus! We’ll have our #Susie Strong around making mischief for a long time. I’ll give him a hug of thanks for that the next time I see him — if he’ll let me. ;-) [He may fear reprisal for that curb kick thing.]

    Rest. Do not respond. I’m still pinging hugs and prayers to both you and your knight, Danny. Rest. Rest. Rest.

    Like

  107. Susie, you are an inspiration. I like the belt too.

    Like

  108. I look at you and see myself two years ago. I so remember that bra! Thank goodness for your fighting spirit, good humor and wonderful husband. I’m glad you did the research and had great docs to help you make sense out of your diagnosis. We both have long natural lives ahead of us. You go, girl!!

    Like

  109. Averil Dean says:

    So glad to hear you’re doing well, Susie. And though the thumbs-up looks slightly less than enthusiastic, you’re still rockin’ the belt and Christmas ornaments.

    Lots and lots of love to you.

    XO

    Like

  110. tedstrutz says:

    Let me say right off the bat before I start the really good comments… Thank You Danny for taking care of our girl! Of course, I realize you have a vested interest, but thank you so much! Yeah, I’d want the crazy one too… that’s the normal, right?

    ***********************************************************

    Suzie… welcome back! Sweet pic up top… I see you still have the blue hat. Your report was really interesting… note: way too much medical description, I’m woozy and will be back later.

    Like

    • tedstrutz says:

      Okay, I’m back. Of course they gave you the extra sedative… your reputation has proceeded you. One of the nurses probably read one of your blogs.

      That Picture! 1) very interesting and clever solution 2) how long did it take you to come up with that expression??? I feel like sending in a donation somewhere 3) actually, I think it’s kind of cute in a way 4) the eyes say a lot

      This post is missing 2 things… No Dance Video… No Roxy! Please make necessary arrangements.

      I would give anything to have a few days of dreamless sleep. Except a Boob Job… err Anti-Boob Job.

      I was very relieved to hear the results and the No Chemo.

      See you around…

      Oh, here’s something to give you a laugh…

      http://tedstrutz.com/2013/06/08/friday-fictioneers-whats-to-get/

      (you know me… always workin’ it!)

      Like

  111. K.B. Owen says:

    Woot! Yay, Susie! You sound remarkably cogent for a gal who’s still coming out of a fog. So glad you’re recovering well, and your prognosis looks so good!

    I promise to be a good girl and get my mammogram – every year. Just got the results of this year’s in the mail today: clear! So, so blessed, and thanks for the reminder to take care of myself.

    Like

  112. Awesome news, Susie! No chemo!

    My doc has me doing mammos every year since I’m 40+. He said the main reason researchers recommend every 2y is because they’ve found false positives to be very stressful on women. He (and I) agreed that we’d risk the stress associated with false positives and go for early detection. SO GLAD you were detected early. BC has affected two women in my family over the past two years. Both have had good outcomes. So glad you have too!

    And you rock the belt!

    Like

  113. marydpierce says:

    You are so freaking amazing! I’m glad you’re healing well and that your sense of humor is still in tact. What great news that you don’t have to do Chemo!!! Fantastic.

    Can I just point out that even just out of the shower – after having surgery – and being draped in tubes, you are still some kind of gorgeous!!

    Thanks for the update. Now go rest! :-)

    Like

  114. Ginger Calem says:

    You are an amazing role model. Thank you. Keep healing and being awesome!

    Like

  115. sonja says:

    Susie, I am so amazed by your positive attitude and your optimism. You are so inspirational to so many. I loved your opening line about “getting a load off your chest”! I laughed at that one! Have you considered a career in comedy? :) You’d be awesome. In the meantime, take it easy and let people pamper you a little. You don’t have to do so much on your own right now. So glad you do not have to deal with the side effects of chemo. My thoughts are with you always. Hugs. (But not too many hugs or you will have to buy me dinner!) ha ha ha!

    Like

  116. Linda says:

    Susie, Love your commentary. You are strong, resilient lady. Now on the road to recovery!

    Like

  117. Melissa Lewicki says:

    “ears for ballast”–what an amazing image. Hope your recovery goes smoothly.

    Like

  118. That soy stat is interesting. Some things you just can’t avoid though, but we are all so grateful you caught this early and that you don’t need chemo. Take care! xxx

    Like

  119. I think you made the right decision. The worst is behind you and now there’s no looking back. Just look forward to all the good things that life has to offer.You’re a hero!

    Like

  120. Catie Rhodes says:

    You’re so brave, Susie. And tough. You’ve got my admiration. Stay strong. And you’ve been in my prayers. Even though (as I said before), you’re so amazing, I wonder if you need them. :)

    Like

  121. edenglenn says:

    Thank you for sharing your story. I danced with breast cancer in 2005 and 2006. Chemo – Mastectomy on left- infection from negative immune system – abcessed – Healing, more healing – Chemo more chemo – radiation. One full year in treatments. No reocurrance and I did reconstruction in 2009 and 2010. I can really relate to the things you are saying.

    Like

  122. El Guapo says:

    Happy to hear the great news!
    (I wonder if they kept you the extra night just so they could enjoy more of your company.)

    Like

  123. I’m so proud of you. Keep up the good work and I hope your next wild ride is a helluva lot more fun than this one has been!

    Like

  124. Is it possible to love two people you’ve never met?
    Yes.
    Yes it is….

    Like

  125. John says:

    So glad your getting better Susie, God bless you and your family. :)

    Like

  126. Reblogged this on Satin Sheet Diva's Blog and commented:
    READ AND LEARN! Survivors survive so that the rest of us can learn from their experiences!

    Like

  127. So glad to hear the good news and very thankful. Many blessings for a complete recovery.

    janet

    Like

  128. Tammy Thramann says:

    You are gorgeous!! I love the pic and what a contraption! For someone who still claims to be in a “haze”- you did a fantastic job of updating us and it sounds like all great news. You were so lucky to have caught it so early and not have to do chemo, what a blessing! Hope to see you out and about soon- you are a true inspiration Susie!!
    xoxo-
    Tammy

    Like

  129. colonialist says:

    Drat. I didn’t intend to be anyonymous. Anyway, this will un-anonymousify me!

    Like

  130. Michelle says:

    Yay for you that you don’t have to do chemo or radiation! I skipped my mammogram this year, and I’m thinking I need to go make that happen now!

    Like

  131. Pingback: Susie Still Strong! | A Number of Things

  132. Anonymous says:

    A most un-fun time, indeed! I am a great fan of using opportunities for sayings like the ‘chest’ one! Love it.
    I really hope progress will now be amazingly fast. You deserve a medal for bravery – NOT pinned on but worn on a ribbon sufficiently short! :)

    Like

  133. I’m so happy you’re on the mend, Susie, and your wild and wacky personality will help you heal even faster. Keep on smiling! :)

    Like

  134. I’m glad you’re starting to come out of your fog and I think you are because who else would have thought to use a belt to hold up those drains or use her feet hooked on the mattress to help herself up out of bed? Just take it one day at a time and before you know it you’ll be wild riding again and throwing your amazing blog parties!

    Like

  135. gardenlilie says:

    Yeah! Wow I knew you had it in you, but the bathroom picture, that’s great. Actually, it is easy, everyone sees you anyway. All the best to you … I can’t believe you had a sixteen millimeter tumor, pretty big. Glad for your negative lymph nodes. Your ride will keep going; I know it ain’t easy. It is not a walk in the park by any means but you can do it!!! Walk and drink liquids cause the pain meds cause constipation like ouch baby! So I’m thinking someday we should meet up and go have some girl fun, that would be plural girl fun. ha ha. Which puts me back down to earth and our energy. There is a reason I met you; I’m glad to know you suzie-q. Remember this is a ride and it does take some time but trust me, if you think you were a positive person to start with, you won’t even recognize yourself a year from now. It’s all good!;)

    Like

    • gardenlilie says:

      One last thing … too much of any one thing is never a good idea, go by the idea of variety being the spice of life. Another words too much exercise, not good, too much fat, not good, too much alcohol, not good, too much sugar, not good, etc., etc. But I firmly believe we did not bring this on, it just is, it just happens. People should not feel guilty, we catch it early with technology and don’t know if we will live or die with it, so we do the maximum to live and have peace. Someday they will be able to rid it before it comes, just not yet. :)

      Like

  136. You are simply amazeballs Susie!! So glad I came across your blog, your sense of humour is wicked and it’s ironic given your circumstances that I actually come here to be cheered up and have a laugh; that’s how good a writer you are. I’m in awe of your bad ass approach to cancer, and grateful for your honesty in not only laying yourself (almost) bare to scrutiny by the world but all the details that most people rarely talk about – who knew there were hand grenade fluid collectors to cope with on top of everything else??! One of my Asian friends (who is also a research scientist) put me off soy for the same reasons you’ve given, not sure if there is any scientific research out there about it but I’ll be interested to see if anyone adds to it in the comments here. Sending you some Queensland sun to chase the clouds away, we have so much it would be a waste not to share :)

    Like

  137. Great news all around! Think of you every day. Please rest. You are truly amazing, I mean it.

    Like

  138. Reblogged this on So, I Read This Book Today . . . and commented:
    This is what I went through (and looked like) a couple of years ago. How brave she is, to show us a picture of herself, tubes, drainage bags and all! I wasn’t that brave! And she is going to have reconstructive surgery, too! I didn’t want to face even more surgery and hospital time, so I had mine removed and I now am the epitome of “flat chested” LOL. At least my surgeon did a good job, and my scars are absolutely flat. They are barely visible now. Shout out to Danny for helping Susie each and every day! This is not a pleasant disease to be an “aide” for. You rock, Danny!

    Like

  139. Bless you, my dear. Just know that it will get better, the pain will go away, and you will no longer have that worry, or that pain, hanging over your head. My thoughts are with you.

    Like

  140. good to see you back. Glad you are recovering and I hope you continue to do so with a vengeance for more wildness and rides. Peace, health and happiness to you.

    Like

  141. zendictive says:

    bows humble (~_~) your a true trooper….our true character shines when we are faced with adversity…

    Like

  142. Don’t comment…you just need to know how wonderful it is to know I get to hear your crazy jokes for a long time.
    Scott

    Like

  143. I sat here and cried. I showed Steve the blog and I said,” God bless Danny for looking after her, if I ever had it I know you would look after me–but if I had it in Canada I would be on my own, like my other 2 cancers”.
    Cancer is a “group thing” and you have your group and you my friend will pull out of this and be stronger than ever. I am on my way Wednesday to go back and look after Ange. Love to you.. just so much love..
    HUGGGGGGGGGGG

    Like

  144. Hey Susie. Our mutual buddy Julie Glover made me aware of your struggles.

    I’m sorry you’ve had this ride. My aunt (premenopausal too) was telling me about the excitement of getting rid of the drains and I didn’t get it. Your photos explain it perfectly. My husband’s prostate cancer (he caught it early and he is young like you) is related to testosterone production–like yours is estrogen related. We are all in this fight together, and I pray we all win.

    My gynecologist told me a number of years ago not to drink soy milk. He said it wasn’t good for me (my mother had breast cancer and ultimately died of brain cancer). I cannot have dairy so I drink almond milk. I’m hopeful that is a good substitute.

    Thinking of you and sending you positive vibes. Go girl!!!

    Like

  145. Elyse says:

    Well done, Susie AND Danny. I will be scheduling my mammogram.

    Like

  146. Julie Catherine says:

    Susie, you are such an inspiration – congratulations on getting through the surgery so well, and being in that terrific percentile! Continuing to send prayers, love and gentle hugs, and keeping you in my thoughts daily. You rock! ~ Love, Julie xoxox

    Like

  147. Susie, I had no idea the recovery time and process would be so long and difficult. I am sending this post to my sister, niece and a couple of friends to encourage them to get those mammograms and stay off the soy. Your post has even induced me to finally get my first ever prostrate exam (at 61).
    You’re also the poster child for keeping spirits up, Susie.

    Like

  148. Angie says:

    Great post!! You are amazing!! Hope your feeling much better soon and Love the title! :D

    Like

  149. Too many of my friends and relatives succumbed to that nasty disease and so I am glad to see that you have beat it. I have to say that you are one (mentally) tough chick. I could never have taken a photo fresh out of the shower like that. You really are an inspiration to us all.

    Like

  150. Sophie Moss says:

    Awww. Susie. I’m thinking of you. You are so strong and courageous to go through this and write about it. I’m learning so much through your experience and I am amazed by your positive spirit. Thank you for sharing your journey. I hope you feel better soon and I’m so so happy you don’t have to go through chemo. You are kicking cancer’s butt!!

    Like

  151. ryankjones says:

    hilarious title! good article

    Like

  152. Wow, I did not know that about soy. Just when you think you’re doing something good for your body… So glad you are feeling better, Susie. You are an inspiration to all of us. Gentle cyber {{hugs}} coming your way.

    Like

  153. Barneysday says:

    Well done, and keep up the wonderful attitude. (Not always easy, I know) congrats on being able to take a shower, I know haw great that must have felt.

    Hooking the edge of the bed with my leg to get up out of bed was what the doctor taught me after my heart surgery. I’m so in the habit I still do that these 5 years later.

    Thanks for sharing your story.

    Like

  154. Thank you so much for sharing this. We have a dear friend who is going to have a double as well. Your post gives us information and a bunch of hope. Thanks Susie, you are something.

    Like

  155. Julie Glover says:

    Thrilled to know that you’re in that low percentile. Good for you. Good for medicine. Good for early detection. Your attitude remains marvelous, and you continue to inspire.

    Keep your body down and your spirits up!

    Like

  156. Wonderful news about your improved risk factors, Susie. Wishing you a speedy and complete recovery.

    Like

  157. You are an inspiration wild child. I’m off to make a mammography appointment. Congtas on avoiding chemo yay

    Like

  158. LuAnn says:

    You are one amazing young woman. I will keep you in my prayers as continue on the road to full recovery.

    Like

  159. Pingback: The Boob Report III – Post-op | Susie Lindau's Wild Ride

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